if I was your cell phone

I’m pretty sure you’d be demanding a refund. After dropping your phone, you noticed some glitches and they’re making you spew expletives.  *&+##*!! How could a gentle doink produce so many problems? Didn’t you just dress it in the newest and sportiest camo Ballistic cover?!

After being diagnosed with a stress fracture in September, my foot was put in a boot and I was told to be non weight bearing. I used a sporty scooter to ambulate. Problem was…..the foot became more and more painful. It wasn’t healing. One day I noticed my entire right leg was bright red and my foot was swollen and icy cold. Water droplets from the shower were like needles piercing my skin. After being lectured by the podiatrist for 4 months I was being overactive and continuing to injure my foot, he finally diagnosed me with Complex Regional Pain Syndrome or Reflex Sympathetic Dystrophy CRPS/RSD. A condition so nice they named it twice. “Whatever you do, don’t Google it. You need an appointment with a pain clinic”. I Googled it. My nervous system is shot. No cure. Your phones’ motherboard is no bueno.

You’ve dutifully changed the battery, but your phone either doesn’t work or it pursues a devious purpose all its’ own. When you call your love-interest, it insists on calling your minister. 50 times! That’s when you take the battery out and stomp it. When you get the new battery installed….and the phone is blessedly working….the first received call is from your pastor. “Are you OK?! I’ve been getting calls from you ALL DAY!”

CRPS causes a myriad of unusual symptoms. A pain in the hip, a twinge in the knee, a muscle sprain in the back. Your toenails/fingernails take on a ridge-y yellow, thick cast and even seem to quit growing. Your hair falls out. (I’ve taken to wearing a weave….that can be a stand-alone blog post)

 

hairweave
The fabulous Johnny Plant making it look like I have thick, glossy hair!

 

 

The worst symptom for me is the speeding freight train of full-body small fiber neuropathy. Imagine a pitcher of ice-cold water being slowly poured over your head. The frigid water begins meandering down your spine. It picks up speed as it grips your arms all the way to your blue fingertips. It completes the journey as it trickles down your legs and pools at your fragile feet. No cure….just gabapentin or lyrica to try to ease symptoms.

 

lyricainfo
reading the lyrica side-effects info

 

 

Oh….and of course….a good dose of antidepressant. Gotta get more serotonin in the brain! On bad days the frigid water over my nerves is incessant and makes me upset, confused and grumpy. On good days, I feel like my feet and hands are periodically held over a smoldering campfire. S’mores, anyone?

crpspain

Your dropped phone doesn’t play videos very well now, either. Oh….you can see them, but sometimes they blur and the sound is crackly. So much for your Netflix subscription and your THE CROWN addiction.

I’m grateful for my sight and I take special care of my eyes because of the problems from Sjogren’s Syndrome. But sometimes I wonder whose glasses I’m wearing. Details aren’t always crisp and clear. My hearing seems to be OK, but there’s been this constant high-pitched screeching in both my ears. Well that is, until last night. Told the Texan I woke up several times in the night thinking the ceiling fan motor was on the fritz as it had developed an annoying, rhythmic whirring and whooshing sound. Problem is, when I turned the fan off the annoying whirring, whooshing sound is now being produced in my right ear. Hey….I can hear it now! We don’t need a new ceiling fan, but you desperately need a new phone.

Sometimes your bestie complains that your calls are dropped. She states she can hear your voice through the microphone, but sometimes the sound is muddled.

I used to sing quite a bit. I suppose it’s natural to lose your voice as you age, but my voice is ‘like a box of chok-lits….you never know…….’ Yeah right. Blah, blah. I still try to offer my muddled and misunderstood voice to folks at the area nursing/veteran’s homes on Monday mornings with my senior choir from church. Nursing home residents mainly only care if you wear a smile and offer a warm hug and handshake. I can’t count on the quality of my voice, but I’m an enthusiastic hugger.

Finally, let’s explore the camera function of the dropped phone. Believe it or not, it takes pretty decent photos. You enjoy the editing choices, as well. A newer model phone might have a slightly bigger sensor but you’re pretty satisfied. Even though most of the functions of the phone are unreliable, the camera is still working pretty well. How about that?

I’ve enjoyed taking photos with my new camera (Sony
RX10m4….another whole blog post) every evening. I go out just before sundown to check on horses and look for photo opportunities.

 

birdcloseup
the common killdeer

 

 

The wiener dog waddles along and helps me with equipment. She’s really good at sniffing out possible subject matter, too.

 

hawk1
a recent hawk sighting

 

I’ve become the John Muir of the great West Texas mesquite forest or the Thoreau of the playa lakes. No detail is too mundane during the golden hour. I’m officially obsessed. I can hear the birds over the ringing and swooshing and I can still amble with my CRPS leg. Not too shabby. The scooter, wheelchair and walker are in the attic.

 

birdatsunset
An example of Muir-ing and Thoreau-ing on my golden hour photo tour

 

Thanks for hangin’ in with the phone analogy. I’ve been thinking of how to describe what is going on with me without being pessimistic or ‘poor me’. I’ve been having some great days and blogging and oversharing help me laugh at these dumb chronic diseases. The pain doc has been my godsend. She tries to keep me going. I’m probably not the person you want to engage in conversation about the opioid crisis or legalized marijuana. More blog post subject matter? Maybe so.

Know you are coping with your own issues. Keep laughing and don’t fall into a hole while looking at your cellphone.

Ernestine….’one ring-y dingy…two ring-y dingy’ love to all.

 

2 thoughts on “if I was your cell phone

  1. Thanks for sharing . The photos are glorious and I am grateful for your glorious hour every day .
    Here is to your pain doc and hoping your antidepressants continue to help you maintain your spirit , sense if humor and levity .

  2. I love the analogy. I have always appreciayed ypur sense of humor and the depths of your faith. Please keep sharing with us.

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