chronic love

Chronic:  long lasting and difficult to eradicate. Persisting for a long time or constantly reoccurring.

I had four appointments with physicians/specialists last week. My old-lady-thinning-hair is even scarcer and grayer. My shoulders are affixed to my ears and I’m trying to unclench my fists. A couple of highlights:

Doctor #1 “How’s your mood?” She insisted I must take an anti-depressant because of my battle with chronic (there’s that word again!!) pain. I told her the last anti-depressant I tried caused my hands to shake uncontrollably. “Let’s try another one!” OK, I’m trying. My hands are shaking. **sigh** Maybe this will pass. The doctor was perfectly lovely and sympathetically communicated what a good job she thought I was doing with all my chronic (damn word!) diagnosis. Oh yeah, she’s sending me to a neurologist. Good times.

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Doc #2, a good friend, is helping my dry eyes improve. I’m having BIG blood draws and they are spinning the plasma into therapeutic drops for my eyes. That’s right…..blood eye drops! How cool is that?

plasma eye drops

The last blood draw was a bonafied vampire cocktail. 25 vials of blood. My right arm spigot coughed up dust after 18 vials. My over-achieving left arm rallied for the last 7. Phlebotomist: “Does it hurt?” After 10 vials, I requested a squeegee for my purple, sweating face.

Doc #3-the cardiologist. My least favorite, most blood-pressure-popping doctor’s office. No matter what time your appointment, you are greeted with the dreaded long check-in line.

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Wait, wait, gaze at waiting room TV, wait, wait. Do I hear my name? Score!! Get called back and put in room. Blood pressure, temp and EKG. Wait, wait, look at phone. Med student comes in to take your history and ask about today’s problem. Wait, wait, thoughtlessly pick nose and boom, in strides the confident doctor. Asks a few questions, the most ironic is….“Is your fast heartbeat concerning to you?” Not really doc, I just adore visiting your office and navigating this maze to enter the Holy of Holies and gaze upon your godlike face ’cause I have nothing else to do! **sigh again**

Got hooked up to a heart monitor for a week. Opened the instructions upon returning home.

heart model

These photos of the ‘heart-monitor-model’ piqued my curiosity.

heart model1

Wonder how many offensive linemen wore these in the Super Bowl? Don’t NOBODY wanna see a picture of a typical heart monitor patient.

 

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Proud to be keeping the hell in healthcare!

 

After having irregular heart rhythms for a year….every day!…not one peep out of my heart for the 5 days I’ve worn this device.

Doc #4-the pain doctor. Got up early for my long-anticipated and long-ago-booked appointment to have my sympathetic nerve block (for my bum leg) and a spinal injection for chronic (you guessed it!) back pain. Texan drove me to the clinic and was to be my chauffeur home. We arrived to a dark and locked clinic. Waited. Called. Waited. Called the answering service. Answering service said they should be there. Waited 30 minutes and then left. No back injections today.

I’m truly grateful for my docs and they seem genuinely sincere. Since there’s no easy answer or ‘cure’ for what ails me, doc visits are frustrating and tear-inducing. We’re all doing our best, I suppose. I may have to call a ‘time-out’ on doctor visits for a while. Spend more time brushing my horse.

Today I’m meditating on Jeremiah 31:3- Yes, I have loved you with an everlasting love; therefore with loving-kindness have I drawn you and continued My faithfulness to you. 

Sometimes I feel chronically frustrated. My life….my health….it’s a hot mess right now. Just when things seem on an even footing, there’s a mudslide. Makes me remember my Mom’s favorite saying, “That’s the way things are when you’re headin’ West”.

In the midst of my chaos, my uncertainty, and my brokenness….God loves me with an everlasting love. A chronic love. It ain’t goin’ nowhere.  That’s God’s healthcare plan. It’s already been purchased and there’s no copay.

Let’s keep givin’ them hell-thcare!

Chronic love to all.

Puddles Pity Party

Do you ever watch America’s Got Talent? After a particularly trying day…a day in which I struggled with pain, doctor’s offices, medications, my freakin’ eyes and ever-changing vision, I lumbered exhaustedly into my awaiting, comfy bed and mindlessly flipped on the boob tube. Didn’t matter what was on. I was done. Calgon take me away.

Suddenly, but slowly HE shuffled on stage.

puddles-pity-party-americas-got-talent

With shoulders stooped and a wrinkly-unkempt costume, this mute clown act was a sure-fire candidate for the giant X-buzzer. “Good luck, Puddles!”

The controlled baritone began quietly. I immediately recognized he was singing the Sia song, Chandelier. I knowingly chuckled and mocked the television from the fluffy bed.

It’s been DONE, Puddles! This song is cliché!

Can’t feel anything, when will I learn. I push it down, push it down

Ok, maybe this sad clown can sing a little. So what?!

1, 2, 3, 1, 2, 3 drink. 1, 2, 3, 1 ,2 ,3 drink

Hey Puddles! Why don’t you bring me a stiff drink about now? Ready to forget the day I just experienced.

I’m gonna swing from the chandelier, from the chandel-LIER!!

I’m feeling your pain, Puddles. You’re so pitifully glum and your full-throated and melancholy baritone ain’t bad.

I’m gonna fly like a bird through the night, feel my tears as they dry.

Where’s the Kleenex? Where is it!?

I’m gonna live like tomorrow doesn’t exist…..cause I’m just holding on for tonight.

Damn you, Puddles!! This ugly cry is on YOU!!

You probably know the end of this story. He received 4 ‘yesses’ from the judges and the crowd adored him. Of all the spectacular acts appearing on AGT…..death-defying stuntmen….leaving-you-breathless magic acts…..auditorium-filling opera voices…..why did folks respond to Puddles? Why did cynical-I like Puddles?

Because some days are hard. Some days are sad. I’m not clinically depressed. I’m counting my blessings. I’m staying on the sunny side. I have lots of fun things on my plate. I have a fantastic family and wonderful friends. But some days, when I’m struggling for relief from this stupid disease (It’s called Sjogren’s Syndrome, and it’s ridiculous), when I feel my own body betraying me, when the meds aren’t relieving the pain, when I feel the mist from this fearfully-approaching, slow-rolling disaster of a tsunami…..these are the days I totally relate to Puddles.

It’s OK to have a sad day. You have them, too. Went to a funeral yesterday and was struck by the lyric, ‘Sometimes I’m up, sometimes I’m down…but still my soul is heavenly bound’. It was a terrible day for my friends. God bless them.

Hope your weekend is brimming with fun and glad things. But, maybe that’s not your reality today. That’s OK. I get it and so does Puddles.

Heavenly-bound love to all.

P.S.-I’m preparing for a grand adventure. Something amazing that God just threw in my lap. I’m a chronic over-sharer so get ready for some blogs describing my journey. Info to follow soon. xo